Some 850,000 people live with dementia in the UK alone and numbers are predicted to rise to over two million by 2051. Alzheimer's Society provides information and support for people with all forms of dementia and those who care for them. The Society runs quality care services, funds research, advises professionals and campaigns for improved health and social care and greater public understanding of dementia.
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Prader-Willi Syndrome (often called PWS) is a complex medical condition that affects both males and females throughout their lives. People with PWS may need extra support with health and development and in the areas of education and work.
People with PWS may present some challenging learning and emotional behaviours and unusual medical issues. The syndrome typically causes low muscle tone with motor development delays, short stature if not treated with growth hormone, and incomplete sexual development. Most people with PWS are floppy at birth with initial difficulties in feeding, but then in early childhood begin to show increased appetite which can lead to excessive eating and life-threatening obesity.
Although PWS presents a group of features that occur together, it is important to remember that every child is an individual. Not every person with PWS will have all of these characteristics.
PWSA UK is a registered charity (No. 1155846) which has been operating for over 30 years and is the only organisation in the UK that is dedicated solely to supporting people with Prader-Willi Syndrome (PWS), their families, carers and professionals, in managing the impact of PWS, promoting transformational interventions, supporting positive, healthy lifestyles as well as more fulfilling life chances, enhancing quality of life and maximising the opportunity to fulfil potential.